Aug
29
2013

Spoke too soon…

I didn’t get a lot of sleep the last two days but that is usually managed but today I felt the energy drain out of me at work. As the shift went on I felt myself getting more and more fatigued and I hurt everywhere like I had the flu, worse than normal. I asked my boss if I could leave early and left a few hours early. I feel like I have an infection [...]

Aug
28
2013

Worked my tail off today like a normal person and loved it!

Spent 8 hours today totally reorganizing and redecorating the house all with stuff we already own and it feels wonderful to be so productive! My strong, 14 year old son Tyler kept trying to baby me when I tried to lift things but I told him I wanted to do all the lifting because I am so happy I can. Found tons of unused great things in my garage thanks to my mom leaving stuff [...]

Aug
27
2013

I’m back!!

I have been quiet here for a while trying to figure out how to make MS work in my life. Its not going anywhere so I have to fit in somehow. This past year has been so amazing compared to last year! I have missed only a few days of work and none at all in months and have even worked overtime and 18hr shifts and lived to tell the tale. Last year I missed [...]

Sep
5
2012

Too many things to think about. So much unknown.

I was thinking yesterday that since being diagnosed with MS a little over a year ago that things seem to have progressed faster than I would have thought. Grant it, who knows how long I have had MS. I have had symptoms for maybe a decade without a diagnosis. Little odd things here and there can be blown off as something normal. Even my PCP said it seemed the progression is unusual. I see my [...]

Aug
24
2012

Where are the funny things?

I laugh at everything, it keeps me happy and sane. I laugh at what my family calls my “jazzs hands” and my sometimes drunk walk. Thank goodness I rarely drink. Actually, I don’t remember the last time I drank alcohol. I’m afraid of what it will do to my balance after even 1 drink or may interact with my meds. After a hard day at work I sometimes go by the grocery store and get [...]

Aug
18
2012

MS, oh how I hate you!

After starting the steroids the stiffness is better and my pain is improved. I’m feeling little pain today but I am feeling completely wiped out, completely exhausted. I promised my son we would go school shopping this weekend. Tyler has grown taller and lost weight and needs a whole new wardrobe.  He needs hours of shopping and I’m not sure if I will be able to keep up. This is when MS makes me really [...]

Aug
16
2012

Oh no, not again…

For the last couple months I have had difficulty urinating now and again but now its turning into all the time. On top of that my morning stiffness has turned into all day stiffness and the pain in the back and hips are back. I thought the Lyrica had it under control. So after seeing my doc, we upped the Lyrica and started me on steroids again. I’m so bummed about that. I always get [...]

Aug
11
2012

Feeling OK…,mostly

My MS (knock on wood) has been behaving fairly well lately, except for the fact that I can barely urinate. I have to sit on the toilet for a long time before I can go. A couple times I had a bit of panic because I had to wait about 10 minutes before I could go and was paranoid that I would have to go to the ER to get a catheter. I have been [...]

Aug
2
2012

Every day that I am the nurse and not the patient is a good day.

I noticed that I haven’t had as much to write about lately and I guess that is a good thing. The Lyrica must be doing the trick. My back pain is virtually gone as well as my shoulder and hip pain. That just proves it is all nerve pain. I have had a couple occasions lately where I have what I call a “pain crisis” and everything hurts so bad I can hardly move, skin, [...]

Jul
26
2012

Ok, hurting again

I don’t know what’s going on. I have felt like I have the flu or something since this morning. I know its not the flu, I think its just all my nerve fibers flared up angry at me for my long work week. I was so proud of myself for making it through all those days too. I fell asleep at 7pm this evening and woke up at 11pm in pain and now I’m awake [...]

Pages:1234»

About Me

My life

This blog documents my struggles and joys as a single mom and registered nurse living with multiple sclerosis.

multiplesclerosisblogs.org
multiplesclerosisblogs.org

Subscribe

Get the latest posts on your e-mail!

Syndication

Recent Comments

Archives